A mother and son duo from Rendlesham are taking on two Suffolk running events to raise money for a Dennington boy with a rare genetic condition.

Ozzy and Victoria Rayner are running the Kesgrave 5km and Woodbridge 10km in support of a friend’s son, Jakob Mccran, who has been diagnosed with MPS VII.

MPS VII, or Sly syndrome, is life-limiting condition caused by a gene mutation which reduces the production of an enzyme which breaks down large sugar molecules, cause the swelling of tissues and organs.

East Anglian Daily Times:

Ozzy, 12, also has a rare genetic condition called Prader-Willi Syndrome, causing him to have low muscle tone, but this has stopped him from taking on the challenge.

Mum Victoria said: “It’s a really big challenge but we’re really excited. Ozzy isn’t a runner but he’s so determined.

“We’re doing it for Lucy, Jakob’s mum. Her kids have never had a proper holiday before so we want them to make memories as a family. It makes you warm inside thinking about it.”

East Anglian Daily Times:

In 2022, Ozzy and Victoria did a 56-mile running challenge for Cancer Research UK - but this time they said they wanted to focus on a cause closer to home.

And they have already smashed their £600 target, raising more than £2,000 in just a week.

Ms Rayner wanted to thank everyone who had donated so far to the cause, which she holds dear to her heart.

She said: “We’re massively overwhelmed. We’re completely blown away and we can’t thank everyone enough.”